Useful Links

If you have any suggestions for links which could be included on this page, please contact us.

Ask Mencap
http://www.askmencap.info/ The information service on learning disability issues, organisations and services.
Askability
http://www.askability.org.uk/ Launched by the Childrens Society Solihull Branch. A website specifically for disabled children that uses Symbol, a pictorial based language.
Bibic
http://www.bibic.org.uk Bibic is a national charity who offer practical help to families caring for children with conditions such as autism, cerebral palsy, down's syndrome, developmental delay, traumatic and acquired brain injury and specific learning difficulties. After funding from the Big Lottery Fund, we have been able to an outreach service covering the West Midlands.
Kylie Holdback
Bibic Outreach Developmental Therapist
for The West Midlands

Tel: 07899 898261
Birmingham City Council
http://www.birmingham.gov.uk/children-services This page is for the Children, Young People & Families directorate.
Brumability
http://www.brumability.com/ The Brumability website is designed to help disabled children to access the web, to communicate with each other, to learn and have fun. Includes information for parents too.
Carers UK
http://www.carersuk.org/Home The site for the national organisation for Carers. There are local branches in Birmingham.
Caudwell Children
http://www.caudwellchildren.com The Charity was registered in March 2000 to make direct donations to individual child cases of sickness, specialised medical requirements and dying wish holidays and initially gave preference to a "Golden Circle" of 50 miles around Stoke on Trent. In 2004 the Charity went nationwide, resulting in a dramatic increase in the number of applications, which now arrive from all parts of the country from as far a field as Aberdeen, Belfast and Southampton, allowing us to help more and more special children.
Caudwell Children receives hundreds of applications every month from children needing our help. When a donation has been approved, we then deal directly with the manufacturer, supplier or service provider, organising every detail of the donation, to alleviate any stress from parents and guardians.
0845 300 1348
charity@caudwellchildren.com
Changing Places
http://www.changing-places.org/ The Changing Places Consortium has launched a campaign on behalf of the thousands of people with profound and multiple learning disabilities and their carers, and the many other disabled people who cannot use standard accessible toilets.

They need Changing Places toilets. These are toilets with enough space for disabled people and their carers, and the right equipment, including a height adjustable changing bench and a hoist.

There are almost no public Changing Places toilets in the UK. Providing these toilets in public places would make a dramatic difference to the lives of thousands of people who desperately need these facilities. Sometimes you just need to change one thing to open up a world of possibility.

The time for change is NOW.
020 7696 6019
ChangingPlaces@mencap.org.uk
Children Today
http://www.children-today.org Children Today give grants for a wide range of equipment for children and young people with disabilities, that are not funded through the NHS. These include powered, manual and sports wheelchairs, specially adapted tricycles, bicycles, buggies and walking aids as well as specially designed sensory equipment such as Fibre Optic Sprays.
Children Today has three main aims:
To raise funds to provide grants for special equipment for disabled children and young people
To raise awareness of the difficulties faced by young people and their families in accessing special equipment that will raise the quality of their lives
To inform of the need for better services and provision for children and young people with disabilities.
They work hard to ensure that the service they provide for disabled children and their families is as accessible and as wide-ranging as possible.
01244 335 622
Contact a Family
http://www.cafamily.org.uk Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability.
Contact a Family became a registered charity in 1979 and have over 30 years of experience of working with families with disabled children.
Check out the website to find out about their free-phone helpline, their publications, medical information, one to one support and their campaigns.

Contact a Family
Prospect Hall
12 College Walk
Selly Oak
Birmingham
B29 6LE
0121 415 4624
westmids.office@cafamily.org.uk
Every Disabled Child Matters
http://www.edcm.org.uk Every Disabled Child Matters is a new campaign by Contact a Family, The Council for Disabled Children, Mencap and the Special Education Consortium. Every Disabled Child Matters is a three-year campaign aimed at getting disabled children higher up the political and media agenda – so that the needs of these families can no longer be ignored.
The campaign went live on 26th September 2006, and so far over 6,000 people have pledged support. To sign up please log on to http://www.edcm.org.uk and register your support, and ask all the parents in your groups and networks and all the professionals you are in contact with or work with to do the same.

For more information about Every Disabled Child Matters, and for all the ways in which you can get involved, please go to http://www.edcm.org.uk or contact Kate Williams on 020 7843 6448.

On the website you can find out how to lobby your MP and local Council about services for disabled children. There is also information about parliamentary reports discussing services and further research.
Face 2 Face befriending
http://www.scope.org.uk/face2face Would you like to talk to another parent who understands what you are going through and can offer emotional and practical support?
Face 2 Face schemes operate across the UK. Anyone living in the area, whose child has been recognised as having a long-term disability, may use their local scheme. It is not necessary for a diagnosis of any condition to have been made.
If there is no scheme in one particular area, we can offer an email or telephone service to link parents with our trained parent befrienders.
c/o SCOPE
0844 800 9189
Fledglings
http://www.fledglings.org.uk Fledglings is a national charity which aims to assist parents and carers of disabled children, or those with additional needs of any kind, by identifying, sourcing and supplying practical, affordable products to address every day issues.
Their approach is to focus on finding solutions to difficulties which arise as a consequence of the disability, rather than on the disability itself.
If you are not online and wish to phone for a brochure call the helpline: They are open Monday to Friday 9.15am to 5pm. On 0845 458 1124
Fledglings, Wenden Court, Station Approach, Wendens Ambo, Saffron Walden CB11 4LB
0845 458 1124
enquiries@fledglings.org.uk
Grandparents Plus
http://www.grandparentsplus.org.uk Grandparents Plus has launched an advice service for grandparents and other family members or friends who are looking after a child because their parents are not able to fulfil that role. We know that a significant proportion of family and friends carers are looking after a disabled child. We offer advice and information on a range of issues including welfare benefits, debt, employment, social care, housing and education.
Grandparents Plus
18 Victoria Park Square
Bethnal Green
London
E2 9PF
0300 123 7015
advice@grandparentsplus.org.uk
N & E B'ham Phab
http://www.nebham.phabclub.org Here you will find information about the club and the things they do. North & East Birmingham Phab Club is for children and young people aged 3 years - 16 years old. They also encourage the whole family to get involved.Phab works in a very practical and active way to promote and encourage people with and without physical disability to come together on equal terms, to achieve complete integration within the wider community.
0121 747 7076
chris@nebham.phabclub.org
NAIDEX
http://www.naidex.co.uk NAIDEX is the UK's largest event for homecare, disability and rehabilitation. It is your best opportunity to touch, test and compare all the latest new products and services available.
OUCH!
http://www.bbc.co.uk/ouch Ouch is a website from the BBC. Its aim is to reflect the lives of disabled people right here and now in the third millennium.
It's not a help and support site. If we were to give it a label, it would probably be closest to lifestyle. We pride ourselves on not being a resource for useful information, though I'm sure you'll find most things you're looking for here. There are many help and support sites out there that do a fantastic job, far better than we could, so we in the BBC's Learning & Interactive department felt it would be good to do something completely different.
We're about personal stuff, minutiae of everyday life and that fantastic dark sense of humour and inevitable cynicism that we disabled people tend to have. Oh, and we don't shy away from subjects that other people might be a bit wary of.
Parent Views Count
http:// www.bgfl.org/parentviewscount This site will be the perfect place for you to share views and get information about the Strategy for Special Provision and the Integrated Strategy for Disabled Children and Young People in Birmingham. You can also find introductions to your Parent Representatives, who are all working very hard to ensure that Parent Views really do Count.
0777 878 3596
ParentViewsCount@aol.com
Racketys
http://www.racketys.com, We are the first company in the UK to produce a range of clothing exclusively for children with special needs. Our exciting new range of clothing is designed to help you and your child’s life become less complicated.
Following extensive research and development with the help of parents, teachers, schools and of course children, our clothes incorporate specially designed fastening and modifications that make getting dressed an altogether less stressful experience.
Children love to look good and feel great – our clothing helps them to do it.
Racketys.com,
Hilwyn Farm,
School Lane,
Longsdon,
Stoke-on-Trent ST9 9QS
01538 381430 9am-6pm Monday to Friday.
myorder@racketys.com
React
http://www.reactcharity.org React -Rapid Effective Assistance for Children with Potentially Terminal illness is a dynamic charity working to improve the quality of life for financially disadvantaged children.
Helping children with life-limiting illness, React works to give these children comfort, dignity and where possible, greater independence. This past year, they have supplied a wide range of equipment from specialist wheelchairs, beds, baths, and mobility aids, to essential everyday items like washing machines and tumble dryers.
Why is React necessary? There are currently an estimated 25,000 children living with life-limiting conditions in the UK (Association for Children with life-threatening or Terminal conditions and their families). Over 25% of Britain's children are being raised in low-income households (Child Poverty Action Group). These figures suggest that there may be as many as 7,000 terminally ill children nationwide whose families cannot afford the costly care they require.
React responds quickly to requests for help, sometimes within hours, with no red tape and meeting needs not met by the authorities or other charities.
React works in co-operation with children's hospices and other support services and also backs research and education projects aimed at improving the quality of life for severely ill children.
React also offer family holidays in one of their five holiday homes around the country. This is often the only chance at a holiday for many of the families and children they help.
React
St Luke's House
270 Sandycombe Road
Kew, Surrey
TW9 3NP
020 8940 2575
SCOPE
http://www.scope.org.uk Useful information about Cerebral Palsy, but also plenty of help for a range of physical disabilities. Especially useful are the "Early Years" section and the Forum.